MARC JR FOUNDATION BLOG
Mary’s Corner
May-ness
May- to most people it means end of school year celebrations, Mother’s Day, kicking off summer, celebrations. To a mom who whose child has passed it also means reminders of loss, marking of time since you held your child and a reminder of what your child may never get...
Brain Cancer Awareness Month
May is Brain Cancer Awareness Month. It is a time to share and promote awareness to those who aren’t walking this world daily. As a fighting or bereaved family sometimes it can be hard to navigate what to share and what not to share to help with awareness. We wanted...
Holidays
Holidays are hard especially after a loved one receives a terminal cancer diagnosis, and especially when it is your child. You spend the lead up to the holidays in the mindset of – will they make it to the holiday? Then you spend the holiday and time after...
Finding Comfort in Books: Helping Children Grieve the Loss of a Loved One
Grieving the loss of a child is an unimaginable pain that no parent should ever have to endure. For families navigating the heartbreaking journey of a Diffuse Intrinsic Pontine Glioma (DIPG) diagnosis, every moment is precious and every resource invaluable. One way to...
Essential Items for Traveling with Kids: A Guide from a Fellow DIPG Parent
As a parent navigating the journey of Diffuse Intrinsic Pontine Glioma (DIPG) with my child, I understand the unique challenges we face, especially when it comes to traveling. Whether it’s making frequent trips to the hospital or taking a much-needed family road trip,...
Summer Fun: Enjoy Classic Games with Your Kids!
Summer is almost here, and it's the perfect time to soak up the sun and share joyful moments with your children. For families navigating the challenges of a DIPG diagnosis, finding ways to enjoy simple, stress-free activities together is especially important. Here are...
Watch for these symptoms of DIPG:
DIPG - Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons (the part of the brain just above the back of the neck and connected to the spine), which controls many of the body’s...
Here’s How You Can Help Your Kid Deal With DIPG Sleep Issues
Getting a good night’s sleep might be difficult for your kid while battling DIPG. Some medications might make sleeping difficult and give rise to DIPG sleep issues. Your child might be in pain or feel anxious because of everything that is happening to him or her. How...
Can Polio Be The Answer To DIPG Treatment?
“Science knows no country, because knowledge belongs to humanity, and is the torch which illuminates the world,” said Louis Pasteur whose discoveries has saved the lives of many people. Today, even though we are moving forward technologically at the speed of light, we...
When The World Mourned For 5-Year-Old Braylynn Lawhon
Four days away from her fifth birthday, Braylynn Lawhon was diagnosed with DIPG. Since then, her mother, Allyn Parker began documenting Braylynn’s journey and her battle with DIPG and shared it on social media to spread awareness. It is surprising but true that...
When 40 Police Departments Surprised Emma, A 7-Year-Old Battling DIPG
“Sometimes it takes only one act of kindness and caring to change a person’s life.” – Jackie Chan Sometimes our lives take unexpected turns, turns that we are not prepared for. In such times even a tiny bit of happiness gives us the strength to brave the storm....
The Story Of Neil Armstrong’s Daughter & Her Battle With DIPG
Karen Anne Armstrong was just two and a half years old when she passed away on January 28, 1962. This was also the sixth wedding anniversary of her parents. A beautiful little girl, Karen had DIPG but doctors at the time weren’t able to tell. Fondly called “Muffie,”...
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