MARC JR FOUNDATION BLOG
While DIPG can affect individuals of various ages, it most commonly strikes children, typically between the ages of 5 and 10. The diagnosis of DIPG in a child can be especially heartbreaking, given its aggressive nature and limited treatment options.
Mary’s Corner
Spring Blues
Spring is often described as a season of renewal; flowers bloom, trees bud, the days grow longer, and the world feels like it is waking up again. But for those carrying grief, spring can feel unexpectedly heavy. When everything around you is beginning again, the...
Understanding DIPG and DMG
When families hear the words DIPG or DMG, they are hearing the name of one of the most aggressive pediatric brain tumors. Here’s the simple difference: DIPG (Diffuse Intrinsic Pontine Glioma) is a tumor that grows in a very specific part of the brainstem called the...
Grief Land Mines
Grief doesn’t move in straight lines. It doesn’t follow a calendar. And it certainly doesn’t ask permission before it shows up. For families walking the road of DIPG/DMG, and especially for those of us living after loss, grief is not just something we carry. It is...
LYNETTE’S BLOG
Finding Comfort in Books: Helping Children Grieve the Loss of a Loved One
Grieving the loss of a child is an unimaginable pain that no parent should ever have to endure. For families navigating the heartbreaking journey of a Diffuse Intrinsic Pontine Glioma (DIPG) diagnosis, every moment is precious and every resource invaluable. One way to...
Essential Items for Traveling with Kids: A Guide from a Fellow DIPG Parent
As a parent navigating the journey of Diffuse Intrinsic Pontine Glioma (DIPG) with my child, I understand the unique challenges we face, especially when it comes to traveling. Whether it’s making frequent trips to the hospital or taking a much-needed family road trip,...
Summer Fun: Enjoy Classic Games with Your Kids!
Summer is almost here, and it's the perfect time to soak up the sun and share joyful moments with your children. For families navigating the challenges of a DIPG diagnosis, finding ways to enjoy simple, stress-free activities together is especially important. Here are...
ABOUT DIPG
Holistic Options
At the Arsenceic Foundation, we are fiercely passionate about community-wellness education. We believe in the natural healing process and emphasize prevention above treatment. We know that food is our “medicine” and teaching people how to thrive is our responsibility....
Watch for these symptoms of DIPG:
DIPG - Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons (the part of the brain just above the back of the neck and connected to the spine), which controls many of the body’s...
Here’s How You Can Help Your Kid Deal With DIPG Sleep Issues
Getting a good night’s sleep might be difficult for your kid while battling DIPG. Some medications might make sleeping difficult and give rise to DIPG sleep issues. Your child might be in pain or feel anxious because of everything that is happening to him or her. How...
FACES OF DIPG
When The World Mourned For 5-Year-Old Braylynn Lawhon
Four days away from her fifth birthday, Braylynn Lawhon was diagnosed with DIPG. Since then, her mother, Allyn Parker began documenting Braylynn’s journey and her battle with DIPG and shared it on social media to spread awareness. It is surprising but true that...
When 40 Police Departments Surprised Emma, A 7-Year-Old Battling DIPG
“Sometimes it takes only one act of kindness and caring to change a person’s life.” – Jackie Chan Sometimes our lives take unexpected turns, turns that we are not prepared for. In such times even a tiny bit of happiness gives us the strength to brave the storm....
The Story Of Neil Armstrong’s Daughter & Her Battle With DIPG
Karen Anne Armstrong was just two and a half years old when she passed away on January 28, 1962. This was also the sixth wedding anniversary of her parents. A beautiful little girl, Karen had DIPG but doctors at the time weren’t able to tell. Fondly called “Muffie,”...
Stay Connected, Stay Informed
Subscribe to Our Email Listing Today!