by Kristin Stegmueller | Feb 17, 2025 | Mary's Corner
Quality v. Quantity of life. Do you find yourself weighing this decision with your child? If they battle DIPG you do- constantly. Every decision is colored by this constant battle of more time with them verses their possible ability to enjoy their time together. I...
by Kristin Stegmueller | Feb 12, 2025 | Mary's Corner
As a popular song says- let’s start at the very beginning. The start of grief- diagnosis day. That fateful day we had naively started by worrying that Mary might need surgery to correct an eye cross (how would we afford that?) and ended with us being told our...
by Lynette Apodaca | Sep 26, 2023 | Lynette's Blog
Introduction Receiving a diagnosis of Diffuse Intrinsic Pontine Glioma (DIPG) for your child is an unimaginable and heart-wrenching experience. As a parent, you’re confronted with a daunting journey filled with uncertainty, fear, and overwhelming anxiety....
by Lynette Apodaca | Sep 21, 2023 | Lynette's Blog
Introduction Life can be filled with unexpected challenges and hurdles that test our resilience. One such challenge is the diagnosis of a child with a DIPG (Diffuse Intrinsic Pontine Glioma) brain tumor. DIPG is a rare and aggressive form of pediatric cancer that...
