May-ness

May-ness

May- to most people it means end of school year celebrations, Mother’s Day, kicking off summer, celebrations. To a mom who whose child has passed it also means reminders of loss, marking of time since you held your child and a reminder of what your child may never get...
Holidays

Holidays

Holidays are hard especially after a loved one receives a terminal cancer diagnosis, and especially when it is your child.  You spend the lead up to the holidays in the mindset of – will they make it to the holiday?  Then you spend the holiday and time after...
PICC Line Pros and Cons

PICC Line Pros and Cons

This week I am going to dive into the pros and cons (from a caregivers perspective only) of choosing to have a PICC line placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared...
PICC v. Port

PICC v. Port

I won’t even pretend to be a medical professional on this but I come to you in this post as a mom. A mom who’s had both placed in her child and had to make the decision on which one to choose. Both involve surgery and risks such as infection but that is...