Understanding DIPG and DMG

Understanding DIPG and DMG

When families hear the words DIPG or DMG, they are hearing the name of one of the most aggressive pediatric brain tumors. Here’s the simple difference: DIPG (Diffuse Intrinsic Pontine Glioma) is a tumor that grows in a very specific part of the brainstem called the...
Valentine’s Day Memory Ideas

Valentine’s Day Memory Ideas

Valentine’s Day can be especially tender after the loss of a child. While the holiday often centers on romance, it is also a day rooted in love—and love never ends. For families grieving a child to DIPG/DMG, this day can become a meaningful opportunity to remember,...
New Year- Same Grief

New Year- Same Grief

The New Year can feel especially heavy when you’re grieving a child. While the world talks about fresh starts and new beginnings, you may be carrying the ache of another year without your child by your side. The turning of the calendar can quietly remind you that time...
Port Pros and Cons

Port Pros and Cons

This week I am going to dive into the pros and cons (from a caregiver’s perspective only) of choosing to have a Port placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared and...