by Kristin Stegmueller | Mar 31, 2025 | Mary's Corner
This week I am going to dive into the pros and cons (from a caregiver’s perspective only) of choosing to have a Port placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared and...
by Kristin Stegmueller | Mar 19, 2025 | Mary's Corner
This week I am going to dive into the pros and cons (from a caregivers perspective only) of choosing to have a PICC line placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared...
by Kristin Stegmueller | Mar 3, 2025 | Mary's Corner
It is no coincidence that Loss and Love both begin with L. If you did not have Love, you would not feel the loss and right now we are feeling the loss hugely. Today marks one year since the last whole day we had with Mary on this s earth; she passed away early in...
by Kristin Stegmueller | Feb 17, 2025 | Mary's Corner
Quality v. Quantity of life. Do you find yourself weighing this decision with your child? If they battle DIPG you do- constantly. Every decision is colored by this constant battle of more time with them verses their possible ability to enjoy their time together. I...
by Kristin Stegmueller | Feb 12, 2025 | Mary's Corner
As a popular song says- let’s start at the very beginning. The start of grief- diagnosis day. That fateful day we had naively started by worrying that Mary might need surgery to correct an eye cross (how would we afford that?) and ended with us being told our...
