by Kristin Stegmueller | Mar 3, 2025 | Mary's Corner
It is no coincidence that Loss and Love both begin with L. If you did not have Love, you would not feel the loss and right now we are feeling the loss hugely. Today marks one year since the last whole day we had with Mary on this s earth; she passed away early in...
by Kristin Stegmueller | Feb 17, 2025 | Mary's Corner
Quality v. Quantity of life. Do you find yourself weighing this decision with your child? If they battle DIPG you do- constantly. Every decision is colored by this constant battle of more time with them verses their possible ability to enjoy their time together. I...
by Kristin Stegmueller | Feb 12, 2025 | Mary's Corner
As a popular song says- let’s start at the very beginning. The start of grief- diagnosis day. That fateful day we had naively started by worrying that Mary might need surgery to correct an eye cross (how would we afford that?) and ended with us being told our...
by Lynette Apodaca | Jul 15, 2024 | Lynette's Blog
As a parent navigating the journey of Diffuse Intrinsic Pontine Glioma (DIPG) with my child, I understand the unique challenges we face, especially when it comes to traveling. Whether it’s making frequent trips to the hospital or taking a much-needed family road trip,...
by Marc Jr Foundation | Apr 4, 2020 | About DIPG
Getting a good night’s sleep might be difficult for your kid while battling DIPG. Some medications might make sleeping difficult and give rise to DIPG sleep issues. Your child might be in pain or feel anxious because of everything that is happening to him or her. How...
