Port Pros and Cons

Port Pros and Cons

This week I am going to dive into the pros and cons (from a caregiver’s perspective only) of choosing to have a Port placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared and...
PICC Line Pros and Cons

PICC Line Pros and Cons

This week I am going to dive into the pros and cons (from a caregivers perspective only) of choosing to have a PICC line placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared...
PICC v. Port

PICC v. Port

I won’t even pretend to be a medical professional on this but I come to you in this post as a mom. A mom who’s had both placed in her child and had to make the decision on which one to choose. Both involve surgery and risks such as infection but that is...
Remembering Our Last Day

Remembering Our Last Day

It is no coincidence that Loss and Love both begin with L.  If you did not have Love, you would not feel the loss and right now we are feeling the loss hugely.   Today marks one year since the last whole day we had with Mary on this s earth; she passed away early in...
Quality v. Quantity

Quality v. Quantity

Quality v. Quantity of life. Do you find yourself weighing this decision with your child? If they battle DIPG you do- constantly. Every decision is colored by this constant battle of more time with them verses their possible ability to enjoy their time together. I...
D Day and Sharing

D Day and Sharing

As a popular song says- let’s start at the very beginning.  The start of grief- diagnosis day.  That fateful day we had naively started by worrying that Mary might need surgery to correct an eye cross (how would we afford that?) and ended with us being told our...