Holidays

Holidays

Holidays are hard especially after a loved one receives a terminal cancer diagnosis, and especially when it is your child.  You spend the lead up to the holidays in the mindset of – will they make it to the holiday?  Then you spend the holiday and time after...
Post-Line Decision Feelings

Post-Line Decision Feelings

This may be the first visual sign that your child is battling something medical.  It is completely normal to be sad and scared. I wish I could tell you this would be the only visual sign but very likely won’t be. Each port access brought its own heartbreak as Mary was...
Port Pros and Cons

Port Pros and Cons

This week I am going to dive into the pros and cons (from a caregiver’s perspective only) of choosing to have a Port placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared and...
PICC Line Pros and Cons

PICC Line Pros and Cons

This week I am going to dive into the pros and cons (from a caregivers perspective only) of choosing to have a PICC line placed into your DIPG/DMG child. Please always consult doctors and take their best medical advice but my hope is this will help you to be prepared...
PICC v. Port

PICC v. Port

I won’t even pretend to be a medical professional on this but I come to you in this post as a mom. A mom who’s had both placed in her child and had to make the decision on which one to choose. Both involve surgery and risks such as infection but that is...
Remembering Our Last Day

Remembering Our Last Day

It is no coincidence that Loss and Love both begin with L.  If you did not have Love, you would not feel the loss and right now we are feeling the loss hugely.   Today marks one year since the last whole day we had with Mary on this s earth; she passed away early in...