Advancing DIPG Awareness with NORD
Marcelo Ramalho-Ortigao has played a key role in filling a long-standing gap by helping create a detailed medical report on DIPG through NORD, offering families and doctors much-needed clarity and resources. His dedication ensures that those facing this rare brain cancer now have reliable information and support at a time when it’s needed most.
Honoring Marcelo’s Contribution to the DIPG Community
Marcelo’s work, which honors the memory of his daughter Juliana, ensures that newly diagnosed families will no longer face an empty page …
Marcelo Ramalho-Ortigao, DSc/PhD, Medical and Science Advisor, DIPG Advocacy Group, and Board Members
The Marc Jr Foundation is proud to recognize the outstanding work of our board member, Marcelo, who has collaborated with the National Organization for Rare Disorders (NORD) to create a comprehensive medical report on Diffuse Intrinsic Pontine Glioma (DIPG).
For many years, DIPG was listed on NORD’s website without detailed information. Families facing this devastating diagnosis were left without clear guidance at a time when answers matter most. Marcelo identified this critical gap and dedicated his time and expertise to addressing it.
The result is a carefully researched, science-based report that provides:
- An overview of DIPG and how it affects patients
- Insight into the population impacted by this disease
- Current treatment options and potential therapies
- Resources that families and clinicians can rely on
Marcelo’s work ensures that newly diagnosed families will no longer face an empty page but instead have access to accurate, trusted information when they need it most His contribution reflects both compassion and commitment to advancing the mission of the Marc Jr Foundation: supporting families, raising awareness, and driving progress against DIPG.
We are deeply grateful to Marcelo for this important achievement and proud to see his work featured by NORD.
You can read the full report on NORD’s website here: Diffuse Intrinsic Pontine Glioma (DIPG) Report – NORD
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