Your child has been diagnosed with diffuse pontine glioma, diffuse intrinsic pontine glioma, or brain stem glioma. You don’t know much about the disease other than what the doctors have just told you. Now what do you do?
Like you, our children were given this same diagnosis.
We Can Help.
The Marc Apodaca Jr. Children’s Glioma Cancer Foundation was formed by the families and friends of children treated for diffuse pontine glioma at The Children's Hospital of Denver. We have put together a gift for you … a binder of information that will help you attain and sort the information to organize paperwork throughout you and your child’s journey. This binder includes:
- General information including a reference guide to the Moss Report
- A Health Guide & Diary
- Some suggested questions for your doctor
- A single place to keep track of appointments, medications, receipts, MRI results, gifts and donations
- Art supplies for your child to create treasures
Upon contacting us, we will provide you with information to assist with your expenses during your child's treatment. You can also print a free copy of The Moss Report from this webpage. This report provides you with a detailed explanation of diffuse pontine gliomas. It includes treatment options and clinical trial information. This can be a helpful addition to the information that your doctor provides to you.
What is MJ’s Foundation?
Marc Apodaca Jr., who the Foundation is in memorial of, was diagnosed in 2007 with a Diffuse Pontine Glioma (DPG). As parents, we realized how little help there was in the form of treatment, information and support for the families facing glioma cancer. Much of the information we did find, from online research or medical journals, was very difficult to understand.
From our experience, we found many families who are facing, or who have faced this dreadful disease to be a wealth of information. We found that once parents and the community are faced with this type of cancer, each unknowingly foster a spirit of compassion, wisdom and charity, and a willingness to share.
We created the Foundation to help support families in their search for answers and to utilize the support of families fighting this insidious disease.
MJ Family Binders and Care Package Program